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Top/Health/Conditions and Diseases/Genetic Disorders/Cystic Fibrosis |
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Cystic Fibrosis : |
| Cystic Fibrosis is an inherited disease of exocrine glands, affecting the pancreas, respiratory system, and sweat glands, usually beginning in infancy and typified by chronic respiratory infections, pancreatic insufficiency, and susceptibility to heat prostration. Cirrhosis of liver occurring in childhood is common and may produce portal hypertension, splenomegaly, and hypersplenism. |
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Cystic Fibrosis |
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24 web sites matced for Cystic Fibrosis |
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CF Advantage
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The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
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PulmonologyChannel
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Information on cystic fibrosis.
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MyCysticFibrosis.com
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Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
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Cystic Fibrosis Resource Center
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Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
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Cystic Fibrosis I.Q. Test
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Test what you know about cystic fibrosis.
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Cystic Fibrosis Health FactSheet
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Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
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Cystic Fibrosis Links
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Cystic Fibrosis Links and Information
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The Breathing Room
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Guidance about the art of living with cystic fibrosis.
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Cystic Fibrosis Management
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Article detailing therapeutic options for co-management.
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Manual for Cystic Fibrosis Patients and their Families
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From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
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Jewish Genetic Diseases - Cystic Fibrosis
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Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
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Cystic Fibrosis Western Australia
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Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
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CF Prescriber
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Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
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Cindy's Friends
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Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
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The Spirit of Lo - Inspirational Book
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Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
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Cystic Fibrosis Medicine
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Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
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Cystic Fibrosis Resource Centre
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A source of information for cystic fibrosis patients, parents, doctors and other carers.
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Home Page-Harminder
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Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
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Irri Shark's Page
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About the '65 roses' story.
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A-Z Directory of Cystic Fibrosis Resources
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Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
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CysticFibrosis.com
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Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
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Medline Plus - Cystic Fibrosis
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A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
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Clayton Bates Cystic Fibrosis Support Site
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For family, friends, and other supporters to find out about the disease and offer support for Clayton.
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Pulmozyme.com
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Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
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