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Top/Health/Conditions and Diseases/Nutrition and Metabolism Disorders/Inherited/Mucopolysaccharidoses |
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Mucopolysaccharidoses : |
| Mucopolysaccharides are long molecular chains of sugar. They are used by the body in the building of connective tissues. They must also be broken down and reused by the body. Children with MPS are unable to produce one of the enzymes essential to this task.
Mucopolysaccharide diseases (or Mucopolysaccharidosis or MPS) are genetic diseases caused by recessive genes.
There are seven Mucopolysaccharide (MPS) disorders. They are refered to as MPS I-VII but many of them go by the name of the doctor who first described the condition as well.
Hunter syndrome, Hurler syndrome, Scheie syndrome, Sanfilippo syndrome, Maroteaux-Lamy syndrome, and Morquio disease are all Mucopolysaccharide diseases. |
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Mucopolysaccharidoses |
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11 web sites matced for Mucopolysaccharidoses |
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Family Village Library: Mucopolysaccharidosis
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Lists types, places to chat, and websites.
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National MPS Society
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Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
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The Canadian Society for Mucopolysaccharide & Related Diseases
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Founded to provide information and support to affected individuals and their families.
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The Ryan Foundation
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A non-profit organization supporting research for those suffering from Mucopolysaccharidosis, or MPS and their families. Articles, including one on the Ryan's current health status, and links.
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The MPS Cup
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A star studded fantasy hockey game and auction, allowing participants to play along side some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
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The Society for Mucopolysaccharide Diseases
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A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
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NORD: Mucopolysaccharidoses
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Offers a list of synonyms, a general discussion and further resources.
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Mucopolysaccharide Disorders
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Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.
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Fairview Health Services (USA): Maroteaux-Lamy Syndrome
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Talks about what the disorder is and treatments being used in clinical trials.
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NINDS Mucopolysaccharidoses Information Page
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Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
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Morquio
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Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.
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