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Top/Health/Conditions and Diseases/Rare Disorders/Cystinosis |
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Cystinosis : |
| Cystinosis is a rare genetic disease affecting both children and adults. |
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8 web sites matced for Cystinosis |
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Cystinosis Central
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Information about this disorder, conferences, data for physicians, updates and links.
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Cystinosis Research Network
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Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
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Cystinosis Foundation
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Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
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Cystinosis Research Foundation
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Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
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The Cystinosis Foundation UK
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Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
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EyeRounds.org: Cystinosis
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Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
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Cystinosis Clinical Resources
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Portal features annotated links for health professionals.
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Cornea and External Diseases - Cystinosis
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Features photographs of an affected eye, information on clinical features and treatment.
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