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Top/Health/Conditions and Diseases/Rare Disorders |
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Rare Disorders : |
| This area contains many subcategories of uncommon types of disorders. |
| Associated Categories for
Rare Disorders |
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11 web sites matced for Rare Disorders |
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Cherubs
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A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
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Human Growth Foundation
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Information about growth-related disorders through education, research, and advocacy. Member driven organization.
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Contact a Family
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Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
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Nomid /Cinca
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Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
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Tetrahydrobiopterin
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Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
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Fibrous Dysplasia Support Online
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For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
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Kindler Syndrome
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An article and case study of this rare disease. Includes links.
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Lymphangiomatosis and Gorham's Vanishing Bone Disease
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Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
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Information Centre for Rare Diseases and Orphan Drugs
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Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
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Office of Rare Diseases
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Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
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ИЦРБЛС
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