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Dercum Disease :
Dercum's disease, Dercum disease, Adiposis Dolorosa, Morbus Dercum, Adiposita Dolorosa, Fettvävsreumatism, painful fatty tumors, lipomas, weakness, obesity. This category is about a disease that has been identified for over a hundred years, yet no recent research exists on the cause of it. It was originally named by Dr. Francis X. Dercum in 1892 as adiposis dolorosa. It has since picked up his name as an identifier and both names seem to be equally popular. It generally occurs in women (less 16% are men), between the ages of 25-40 (in Sweden) or 40-65 (in the USA). They cite obesity as a cause, but they have it backwards -- the disease actually causes the obesity -- and weight reduction efforts have little effect on the pain or the obesity. Two articles has attributed it to an autosomal dominant genetic disease, but there is no explanation why it can be benign in some and so debilitating in others. There is no cure, and no easy way to diagnose that a person has this disease. The key(s) are painful fatty deposits (benign lipomas, either encapsulated or diffuse), where the pain has been evident for three (3) months or more. All treatments are palliative -- treat the symptoms -- ease the pain, suction out (via liposuction) or excise the more painful tumors (remember they are benign), and counsel the patient to be able to endure the never-ending pain. Research into the cause or the stimulus that worsens the disease is needed.
30 web sites matced for Dercum Disease
Cancer: Causes and Effects
Chapter from Dr. Ed Friedlander's online textbook. Adiposis Dolorosa (Dercum's Disease) is mentioned (search for "adiposis"). Even though the lipomas (tumors) are benign, they can cause problems just by being, and he lists a number of examples.

Lipomas, Lipomatosis, and Certain Clinical Types of Abnormal Fat Deposit
This is an older article (1974) that has a section describing the Adiposis Dolorosa (Dercum's Disease or Dercum Syndrome), as well as other diseases affecting the fatty deposits.

OMIM Entry for Adiposis Dolorosa (Dercum's Disease)
This OMIM (Online Mendelian Inheritance in Man) site uses some very limited research (2 papers dealing with 3 families) to conclude that this may be an inherited illness.

Bones and Soft Tissue
Section of an online medical/pathology text book by Dr. Ed Friedlander. Buried in here are some comments on Dercum's Disease (search for "dercum" to find them).

National Library of Medicine PubMed References
This is a listing of the references to Dercum's Disease culled from Medline, the National Library of Medicine data base.  (aka Dercum Syndrome, Adiposis Dolorosa)

Yahoo! Groups: dercums_disease
This is a group discussion area for those with dercum's disease, and provides a means of sharing experiences and ideas.

Who named it? - Dercum's disease or syndrome
Provides a brief description of the disease, as well as other names for the disease.

Dercum Disease (NORD article)
A short discussion about this rare disorder (aka Dercum's Disease, Adiposis Dolorosa), characterized by pressure of fatty deposits on nerves, resulting in weakness and pain. Some resources are listed for further study. This entry is provided by NORD (National Organization for Rare Disorders).

Lipoma
This site references some articles dealing with Dercum's Disease, and provides synopses of them.

Subcutaneous Lipomas | BluePrint for Health
BluePrint for Health provides information on health and wellness. It this case, it is a general article on lipomas, with reference to Dercum's disease.

Dercums Sjukdom (Swedish)
Marie Hallsten's Dercum site, in Swedish. Can be viewed with Microsoft Internet Explorer (Netscape 4.77 doesn't work). Click on the "Dercums disease" button for an English summary page

Lipoma Excision- March 1, 2002 - American Family Physician
An article describing the excision of a lipoma. Dercum's in mentioned within the article.

Hundreds of Lipomas
Patient medical question and doctor answer from The Neurology and Neurosurgery Forum at Med Help. This question is about hundreds of lipomas.

Italian Dercum Disease page
An Italian page discussing Dercum's Disease. This site is in Italian and English - this is the English reference.

eMedicine - Adiposis Dolorosa : Article by Nada Macaron, MD
Overview article describing Dercum's Disease. It is a melding of the various existing Dercum articles into a coherent presentation.

Lipomatosis Dolorosa, Morbus Dercum - University of Magdeburg (Germany) English article
This page is the English translation of a German journal article on Dercum's disease. Other information, in German, is available on the website.

ILDS: ICD-10 - by Code [E88.210 - G71.110]
This site contains a list of Dermatology disease codes that include Dercum's. Adiposis dolorosa is at the top of list: E88.210 (use to be E88200).

Dercum's Disease, also known as Adiposis Dolorosa
Symptoms, personal stories, and research that has been done in the study of Dercum's Disease. Includes a medical article describing the disease and references to scores of other articles. Chat room on Tuesday evenings.

Dorrit Hvam's Dercum's Disease Page (Danish)
This is the English page of a Danish language site describing Dercum's Disease - use Microsoft IE or Netscape 6.x to view.

Dercum's Syndrome, Lipomatosis Dolorosa-Adiposis Dolorosa and Morbus Dercum,
Generally describes the disease. The author thinks that it may respond to special diet.

Dercum's Hope
A new (and still unfinished) website developed by the Dercum's Yahoo chat group to provide information and support about the disease.

Medical News - Dercum's Disease - From a patient
A recent article by a Dercum's patient from Denmark.

Brorson/Fagher Article on Dercum's Disease or Adiposis Dolorosa
This is an excellent overview article on the disease characterized by painful lipomas (benign fatty tumors). Note that the first part of the article is a biography of Dr. Dercum.

Corticosteroid-Induced Juxta-articular Adiposis Dolorosa
This article discusses a case of Dercum's Disease in the knee that was apparently caused by corticosteroid usage.

Emerging Worlds, Dercum's Disease page
The site explores the possibility that chronic diseases are caused by stealth viruses, and that Dercum's Disease fits in that category. This page describes Dercum's Disease, and most of the description is taken from the Swedish site.

Nunnie's Story - Adiposis Dolorosa AKA Dercum's Disease
Diary entries of Nunnie, aka Pam Pole, on her road of discovery of Dercum's.

English information about Dercums disease
This information is courtesy of the Swedish Dercum's Group, explaining some of the frustrations of having this disease.

Dermatologic Diseases and Problems of Women Throughout the Life Cycle
Article by Brenner and Politi on women's dermatological problems from the International Journal of Dermatology. There is a section on Dercum's Disease toward the end of the article.

A discussion chain about Dercums - am i alone with fatty tumors
A message board exchange on Dercum's

Familial Multiple Lipomas
This is a doctor's page entitled "Cancers Treated". The doctor discusses some diseases associated with lipomas. He is a cancer doctor and does not consider Dercum's disease serious. His description appears to based on some of the older literature, not first hand experience.

 
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